October 17, 2022
Shemiah was born with a rare disease Ska-Fo-Sey-Fally, a condition in which the head is disproportionately long and narrow. At first Shemiah gave all appearances of being a healthy baby. He was carried to full term and weighed 6 pounds, 3 ounces. He boasted a full head of hair. A haircut revealed his misshapen skull, and the realization that something was terribly wrong with their baby. Shemiah’s doctor immediately sent him to a specialist, who then referred the family to Miami Children’s Hospital.